Developing the Patient-reported Genetic testing Utility InDEx (P-GUIDE)

The Hayeems lab at The Hospital for Sick Children (SickKids) is developing a checklist to measure how parents/caregivers value genetic testing. This checklist will help provide evidence to guide funding decisions and access to genetic tests for children.

Dr. Robin Hayeems

Who can participate: 
Parents of children with a neurodevelopmental condition, including ASD, who have received genetic test results from a doctor or genetic counsellor in Canada in the last 12 months, and are comfortable communicating in English.

What’s involved: 
A 10 min eligibility and consent virtual call. Once approved participants will do a 15-20 min online questionnaire about your experience with genetic testing.

Participants will recieve a $15 gift card in appreciation of their time.

Interested in participating:  
If you have any questions please e-mail