Parents Empowering Neurodiverse Kids – Strongest Families Neurodevelopmental Study

Summary: 
The purpose of this study is to test two versions of an online parenting program for parents of children diagnosed with a neurodevelopmental disability who also experience disruptive behaviours. The “Parents Empowering Neurodiverse Kids” program consists of 11 learning modules, an online Parent-to-Parent support group and links to disability resource information. One version of the program has weekly telephone coaching; one version is self-guided (no coaching).

Researchers: 
Patrick McGrath, IWK Health Centre 
Lucyna Lach, McGill University

Who can participate: 
Parents/caregivers of children aged 3-14 years diagnosed with Neurodevelopmental Disabilities and living in Canada will be recruited into the study. Diagnoses may include Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Global Developmental Delay, Down Syndrome, Fetal Alcohol Spectrum Disorder, severe learning disability or any other diagnosis that influences how a child gets around, communicates their ideas, processes what they hear, or remembers things.

What’s involved: 
Eligible parents are randomly placed into one of three study groups: 1) completing the coached program 2) completing the self-guided program or 3) receiving links to online information* about childhood disabilities. Parents answer questionnaires 3 times during the 10 month study period. *Parents assigned to the information group will receive access to the Self-Guided program and the online Parent-to-Parent support group at the end of their study participation.

Compensation:
Participants will receive $50 (gift card or cheque) each time they complete the online questionnaires (up to $150).

Interested in participating: If you are interested in participating or have any questions about this study, please email sf.neuro.study@iwk.nshealth.ca  or visit www.crfh.ca/neuro.  Apply to the study: www.myStudies.ca/neuro

Deadline:
November 2020

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