Call for Participants

How to have your research study posted here:

If you would like your Call for Participants posted, please submit the Submission request for to Research@autismcanada.org along with a copy of your ethics approval.


 

Autism/Sensory Sensitivities in the Emergency Department

Summary: This project is about trying to improve the system of the emergency department environment for children with autism and sensory sensitivities. In particular, we are interested in improving the triage and waiting experience. 

Researchers: Dr. Sasha Litwin and Dr. Katherine Sellen from OCAD University.

Who can Participate: Any parent/guardian of a child with sensory sensitivities and/or autism spectrum disorder who has an emergency department visit.

What’s Involved: Completing a 1-hour interview in person for parents who live in Toronto, or by telephone. The researchers are interested in interviewing parents/guardians of children with autism and sensory sensitivities who have visited any emergency department to learn more about their experiences. 

Interested in participating: To learn more or participate, please email Dr. Sasha Litwin at 3164583@student.ocadu.ca. The deadline to participate is June 6, 2018.

Posted: April 2018


Virtual Mindfulness for Adults with ASD

Summary: Mindfulness involves bringing your attention and awareness to the present moment, which can help to promote mental health and well-being. The researchers are interested in learning if mindfulness training is something that adults on the autism spectrum would be interested in taking part in, and if it can be delivered using a web-based program. The survey results will be used to design such a group.

Researcher(s): Dr. Yona Lunsky (Principal Investigator), Dr. Jonathan Weiss (Co-Investigator) and Dr. Johanna Lake (Co-Investigator).

Who can Participate: Adults (18+ years old) on the autism spectrum

What’s Involved: Completing a brief survey on your interest in mindfulness

Interested in participating: If you have questions about this study, please email yona.lunsky@camh.ca. If you would like to participate, complete the survey here. The deadline to participate is May 20, 2018.

Participants will not be compensated for participation in this study.

Posted: March 2018


Health Equity Status of Caregivers of Older Adults Who Have Autism

Summary: The purpose of this study is to learn about what is and is not working in Ontario in the care and service provision to older adults who have Autism. The researcher is seeking to learn what needs caregivers of older adults with Autism have, how these needs are met, by whom and what needs or questions are going unmet.

Researcher(s): Principal Investigator: Dr Ken Kirkwood. Co-Investigators: Heather Church, Ph.D Candidate, RP, BCBA. Western Health Sciences.

Who can Participate:  Caregivers who are not paid to care for someone 35 years old or older, who has Autism. Must be English speaking.

What’s Involved: Complete two 1-hour interviews.

Interested in Participating: Please contact Heather Church, Western Health Sciences, at hchurch3@uwo.ca.  Primary Investigator: Dr. Ken Kirkwood, Kkirkwo2@uwo.ca

Participants will not be compensated for participation in this study.

Posted: March 2018


Caregiver Resilience and Coping Resources

Summary: There is an increase in informal caregivers and a concern for their overall well-being. Informal caregivers are at increased risk of conditions that may negatively contribute to their overall health leading to caregiver burden. Therefore, the first aim of this study is to add to the knowledge of caregiver social support use by examining the relationship between caregivers’ confidence, ability, and resilience when managing caregiving responsibilities and their attitude towards social supports. The second aim is to better understand the concept of resilience in caregivers and to gain insight on how self-efficacy and language as a resource influences coping mechanism and resilience. Ultimately, the result of this research may help service providers improve supports and interventions to increase caregiver support resources such as personal skills and abilities and support networks.

Researcher(s): KJoanna Cheung Kwan Leung: joanche8@my.yorku.ca and Tonino Iafrate: tonino8@yorku.ca

Who can Participate:  Informal caregivers for a person requiring assistance with one or more activities of daily living. Caregivers must be older than 18 years of age. Monolingual and bilingual caregivers. Residing in North American continent.

What’s Involved: Complete questionnaire through one of three methods: online, mail-in form or through in-person interview.

Interested in Participating: Please contact KJoanna Cheung Kwan Leung: joanche8@my.yorku.ca and Tonino Iafrate: tonino8@yorku.ca. Survey link: https://www.surveymonkey.com/r/caring_4_carers

Participants have a chance to win one of five $10 Tim Horton’s gift cards.

Posted: March 2018


The role of the eyes in face recognition: A neurocognitive assessment in autism spectrum disorder

Summary: The Face Processing and Social Cognition Lab at the University of Waterloo is recruiting adults with ASD for a study on face recognition and social functioning. 

Researcher(s): Karisa Parkington (PhD Candidate, Department of Psychology, University of Waterloo) and Dr. Roxane Itier (Associate Professor, Department of Psychology, University of Waterloo).

Who can Participate: High-functioning adults (aged 18-45) with autism spectrum disorder (ASD) living in Kitchener-Waterloo, Ontario, or surrounding areas.

What’s Involved: Participants will be asked to complete two sessions (each session lasts ~three hours) approximately one week apart. Session One includes a demographics questionnaire, a face-to-face conversation (eye movements will be recorded), a short video (eye movements will be recorded), and paper tasks. Session Two includes four computer tasks with faces or cars (eye movements will be recorded for two of these tasks), two computer tasks with faces, objects, or facial features (EEG brain wave activity will be recorded) and five questionnaires.

Interested in Participating: Please contact Karisa Parkington at kparkington@uwaterloo.ca or (519) 888-4567 ext. 38872. Participants will receive up to $80 cash in appreciation of their time, and those travelling from outside the Kitchener-Waterloo region will also be compensated for travel. The deadline to participate is August 2019.

Posted: March 2018


Health equity status of caregivers of older adults with autism

Summary: This study examines the health impacts of policy on informal (i.e., unpaid) caregivers of older adults (i.e., 35+ years old) who have autism. The purpose is to understand what is working, what is not working and what informal caregivers need in relation to the Services and Supports to Promote the Social Inclusion of Persons with Developmental Disabilities Act (2008) in Ontario in order to meet their own health needs as they care for an older adult who has autism.

Researcher(s): Dr. Ken Kirkwood, Heather Church, Dr. Marily Evans and Dr. Jason Brown.

Who can participate: Unpaid caregivers who care for an adult, 35 years or older, who has autism. The caregiver must be able to complete an interview in English.

What’s Involved: Completing an interview in person or over the phone, and then completing a few questionnaires, which can be completed in person, over the phone or mailed to you.

Interested in Participating: Please contact Heather Church at hchurch3@uwo.ca. The deadline to participate is September 2018.


Parenting stress in parents of children with developmental disabilities

Summary: The purpose of this study is to understand the commonalities and differences in the experiences of African immigrant parents, in order to identify ways to help parents cope better and to have a positive experience with their child.

Researcher(s): Busi Ncube, Ph.D. candidate, from York University.

Who can participate: African immigrant parents who have children with autism spectrum disorder (ASD).

What’s Involved: Completing an online questionnaire (15-20 mins) about your experiences raising a child with autism spectrum disorder. Participants will also be asked to complete a confidential interview that can be scheduled at their convenience. Interviews can be completed in person or over the phone (45-60 mins). 

Interested in Participating: For more information, please contact Busi Ncube at perrylab.york@gmail.com or 416-736-2100 ext. 40266. To participate, click here to begin the online questionnaire (password: Canada).

Parents will be offered $35 for their participation. Parents will remain anonymous – their names and identifying information will not be released with the results of the study.  

Posted: November 2017


Conversations with people with autism: A survey of partner perceptions

Summary: This study will explore whether the way a person with ASD communicates presents challenges to the conversational partner. This information may help the researchers to understand the conversational needs of people with ASD.

Researcher(s): Mark Carter (Associate Professor), Jennifer Stephenson (Associate Professor) and Mrs. Ying Sng, Ph.D. candidate, from Macquarie University in Sydney, Australia.

Who can participate: Anyone aged 16 and over who has regular conversations with a person diagnosed with autism.

What’s Involved: Participants are invited to access an online survey (link below). The survey should take less than 10 minutes to complete. Following, participants will be asked to:
1) Answer a number of non-identifying demographic questions about themselves and the conversation partner they have in mind (e.g., participant and conversation partner’s age, relationship – spouse, parent, friend, sibling etc.)
2) Respond to a number of statements describing a typical conversation with the individual with autism.

Interested in participating: For more information, please contact Mrs. Ying Sng via email ying.sng@mq.edu.au. To participate, click here.

Posted: November 2017


Fathers’ involvement and experiences of support

Summary: The purpose of this study is to examine fathers’ involvement with their children with autism and their experiences of support.

Researcher(s): Jason Bloom, Ph.D. student at the University of Windsor, under the supervision of Dr. Marcia Gragg.

Who can participate: Fathers (including biological, step-, adoptive, foster-, grand-, etc.) who are raising a child aged 4-11 with Autism Spectrum Disorder. 

What’s Involved: Fathers will be asked to complete a screening questionnaire on autism for their child and an online survey, which will take 30 minutes. They will also have the option to partake in a phone interview.

Interested in participating: Please contact Jason Bloom at bloomj@uwindsor.ca.

You will be offered a $5 donation gift card that can be redeemed as a donation to thousands of charities across Canada.

Posted: August 2017


Bilingualism effects on language development and executive functioning

Summary: This study examines the effects of bilingualism on language development and executive functioning in children with autism spectrum disorder (ASD) and non-autistic children.

Researcher(s): Myriam L.H. Beauchamp, SLP and Ph.D. candidate, under the supervision of Andrea MacLeod, Ph.D. École d’orthophonie et d’audiologie, Université de Montréal.

Who can participate: Children with ASD (HFA, Asperger’s, or PDD-NOS) and non-autistic children who are 6 to 9 years old. Participants must be bilingual or monolingual (with French or English as one of their languages), communicate verbally and reside in the Greater Ottawa and Greater Montreal regions.

What’s involved: Two to three testing sessions lasting 1.5-2 hours each. Sessions involve standardized language and cognitive testing, narrative skills tests as well as three experimental executive function tasks resembling computer games.

Interested in participating: For more information or to participate, please contact Myriam Beauchamp at etudelangage.languagestudy@gmail.com.

Families will receive a $15 compensation and children will receive a small gift after every session.

Posted: August 2017


Online research for parents of children with Autism Spectrum Disorder: Quality of life study

Summary: The purpose of this study is to examine the well-being of school-aged children with autism spectrum disorder (ASD).

Researcher(s): Mandy Fulton, Ph.D. candidate, under the supervision of Barbara D’Entremont, Ph.D., L. Psyc, at the University of New Brunswick.

Who can participate: Parents who have a child with autism between 8-11 years old.

What’s Involved: Completing an online questionnaire, which will take approximately 20 minutes of your time.

Interested in participating: For more information, please contact Mandy Fulton at t533z@unb.ca, or Dr. D’Entremont at bdentrem@unb.ca. To participate, visit: https://survey.psyc.unb.ca/qolconsent.aspx

You may choose to enter into a draw for one of five chances to win $20.00 (USD). Your answers will provide important information for helping professionals to better understand the quality of life of children with ASD.

Posted: August 2017


High school transition and family quality of life

Summary: The purpose of this study is to explore the rewards, stresses, and quality of life of parents of children with ASD (including Autism, Asperger’s, and Pervasive Developmental Disorder Not Otherwise Specified) as their children with transition out of high school.

Researcher(s): Jay Best, Ph.D. student, and Dr. Barbara D’Entremont, Ph.D., L. Psyc, at the University of New Brunswick.

Who can participate: Parents who have a child with Autism, Aspergers, or PDD-NOS (Pervasive Developmental Disorder –not otherwise specified) AND their child is in high school (grades 9-12) in Canada OR their child completed high school in Canada within the last 3 years. If you have more than one child who fits the above criteria, please fill out the survey for the child who you believe has the most impact on your family’s quality of life.

What’s Involved: Completing an online survey, which will take approximately one hour of your time.

Interested in participating: To participate, visit: https://survey.psyc.unb.ca/transitionsurvey.aspx

Upon submission of your survey data, participants will be given the opportunity to leave their email on a separate site to be entered to win one of five $20.00 (CAD) VISA gift cards.

Posted: August 2017


Violence against women with disabilities

Summary: The survey will contribute to the existing knowledge on, and in trying to better understand the lived reality of abused women with disabilities in New Brunswick.

Researcher(s): Angela Wisniewski and Rina Arseneault, Associate Director of the Muriel McQueen Fergusson Centre, at the University of New Brunswick.

Who can participate: While anyone who is a resident of New Brunswick is welcome to complete the survey, the survey is targeted primarily for professionals who work with people with disabilities in some capacity, as well as individuals in the field of violence against women.

What’s Involved: Completing an online survey, which will take about 20 minutes of your time.

Interested in participating: For more information, please email Angela Wisniewski at awisniew@unb.ca or Rina Arseneault at rinaa@unb.ca. The deadline to complete the survey is September 8, 2017. To participate, visit: https://www.surveymonkey.com/r/QZ2S5YN

Posted: August 2017


Understanding autism service preferences

Summary: The purpose of this study is to learn about how individuals on the spectrum and their families think and feel about different services they have used.

Researcher(s): Dr. Ariel Cascio and Dr. Eric Racine, Institut de recherches cliniques de Montréal (IRCM).

Who can participate: Individuals on the autism spectrum and their families.

What’s Involved: Completing an online survey.

Interested in participating: For more information, please email ariel.cascio@ircm.qc.ca (Ariel Cascio) or eric.racine@ircm.qc.ca (Eric Racine). The survey can be completed in English, French, Italian, or German. To participate, visit: https://www.surveymonkey.com/r/N2LZ5J5.

Participants will be given the opportunity to enter your email into a drawing for one of five $100 (CAD) Amazon gift cards. 

Posted: July 2017


Perceptions of parents and practitioners on the use and effectiveness of Picture Exchange Communication System (PECS) with children with autism and other developmental disability

Summary: The purpose of this study is to learn about the perceptions of parents and practitioners who have children with autism regarding Picture Exchange Communication system (PECS).

Researcher(s): Batool Alsayedhassan, Ph.D. student at Texas Tech University under the supervision of Dr. Devender Banda.

Who can participate: Parents and practitioners (i.e., teachers, teaching assistants, speech language pathologists, clinic personnel, therapists, behavioral analyst) who have a child using PECS, or works with a child with autism or developmental disabilities who is facing communication difficulties and using PECS currently, or used PECS previously.

What’s Involved: Completing an online survey, which will take about 15-20 minutes.

Interested in participating: For more information, please call or email Dr. Devender Banda at (806-834-4827) devender.banda@ttu.edu or Batool Alsayedhassan at (865-308-9295) Batool.alsayedhassan@ttu.edu. To participate, visit: https://educttu.az1.qualtrics.com/jfe/form/SV_bIzALQXCcAHaxSd

Posted: August 2017


Co-parenting, Autism Spectrum Disorder and Asperger’s

Summary: The aim of this study is to investigate how the different aspects of co-parenting (e.g., childrearing agreements, co-parental support and undermining behaviours, division of labour, joint management of family dynamics and parenting-based closeness) impact intimate relationships, parental stress, anxiety and depression. By investigating parents’ experiences, the results of the current study will improve our understanding of the unique challenges and issues that co-parenting brings when raising a child with ASD.

Researcher(s): Cody Morris, Ph.D. student at Bond University under the supervision of Dr. Lisa Abel.

Who can participate: Biological or non-biological parents (married, de facto, or cohabitating couples, irrespective of sexual orientation) who have a child with ASD. Participation is also open to all married, de facto, and cohabitating couples in which one of the partners has a formal or informal diagnosis of Autism Spectrum Disorder or Asperger’s syndrome.

What’s Involved: Completing an online questionnaire, which will take approximately 40-50 minutes.

Interested in participating: For more information, please email Cody Morris at cody.morris@student.bond.edu.au or Dr. Lisa Abel at label@bond.edu.au. To participate, visit: bit.ly/bondsurvey.

Posted: July 2017


Co-parenting support and father involvement with their children with autism

Summary: The purpose of this study is to examine the influence of coparenting support on fathers involvement with their children with autism.

Researcher(s): Jason Bloom, Ph.D. student at the University of Windsor being supervised by Dr. Marcia Gragg.

Who can participate: Fathers (including biological, step-, adoptive, foster-, grand-, etc.) that are raising a child aged 4-11 with Autism Spectrum Disorder. Fathers must have a coparent, with whom they share parenting responsibility for the child with autism.

What’s Involved: Participants will be given a link to an online survey asking them about their parenting experiences and supports. The survey will take 20-35 minutes. Fathers will also have the option to participate in a 20-minute phone interview. These fathers will be offered a $5 electronic donation gift card to CanadaHelps.org for completing the interview.

Interested in participating: Please contact Jason Bloom at bloomj@uwindsor.ca.

Posted: July 2017


Parents perspectives on their child with autism spectrum disorders transition to adulthood

Summary: The purpose of this study is to examine which factors predict parent stress and family quality of life for parents of children with Autism Spectrum Disorder (ASD) when that child is making the transition out of high school. Although some research has shown that this is a stressful transition for parents, little research has been done to examine what factors predict that stress. Specifically, we are interested in examining the predictive power of parent coping strategies, child behaviour, and transition related details in predicting parent stress and family quality of life.

Researcher(s):  Jay Best, Ph.D. student at the University of New Brunswick being supervised by Dr. Barbara D’Entremont.

Who can participate:  If you have a child with Autism, Aspergers, or PDD-NOS (Pervasive Developmental Disorder – not otherwise specified) AND your child is in high school (grades 9-12) in Canada OR your child completed high school in Canada within the last 3 years, we are interested in hearing from you.

What’s Involved: Information that is collected will be kept confidential. Parents’ participation in this study is entirely voluntary and as such, they may withdraw at any point in time. Upon completion of the survey, parents may choose to leave a contact email (to be kept separate from their data) to be entered to win one of five $20.00 VISA gift cards.

Interested in participating:  For more information please contact Jay Best at jay.best@unb.ca or Dr. Barbara D’Entremont at bdentrem@unb.ca. To participate, visit: https://survey.psyc.unb.ca/transitionsurvey.aspx

Posted: March 2017


Quality of life of school-aged children with Autism Spectrum Disorder: Factors that predict parents’ perspective

Summary: The purpose of this study is to examine which factors predict quality of life for school-aged children with Autism Spectrum Disorder (ASD). We are interested in individual and environmental factors which may be related to higher levels of quality of life for these children. Should parents choose to participate they will be directed to an online survey that will ask them demographic details and details related to quality of life, the child’s autism symptoms, behaviours, functional skills, task persistence, parent’s mental well-being, siblings, school setting, friendships, and participation in activities outside of school.

Researcher(s):  Mandy Fulton, Ph.D. candidate at the University of New Brunswick being supervised by Dr. Barbara D’Entremont.

Who can participate:  Parents of a child with ASD between 8-11 years old. 

What’s Involved: The survey should take roughly 30 minutes to complete.

Interested in participating: For more information please contact Mandy Fulton at t533z@unb.ca or Dr. Barbara D’Entremont at bdentrem@unb.ca. To participate visit:   https://survey.psyc.unb.ca/qolconsent.aspx

Posted: March 2017


Exploring risk and protective factors relating to thoughts and attempts to end own life in adults with and without Autism Spectrum Conditions (ASC)

Summary: We are currently looking for volunteers to take part in a research study investigating factors which may increase or protect against the risk of developing thoughts and behaviours of ending one’s own life. This study is part of wider research being carried out at Coventry University considering the experiences of adults with Autism Spectrum Conditions (ASC) who do and do not think or act towards ending their own life.

Researcher(s):  Kathy Cook, PhD candidate, Dr. Sarah Cassidy supervising.

Who can participate:  We are looking for adults, aged between 18 and 60 years of age who do and do not have a diagnosis of an ASC (including Asperger’s Syndrome, Classic Autism, high-functioning autism, Pervasive Development Disorder and others) to help us with our research.

What’s Involved: Taking part in the study will involve answering a range of questions through an online anonymous survey. Questions will ask you about your thoughts and feelings in different situations, (including those on self-harm and ending own life), and the way you experience different sensations. Nearly all questions are multiple choice from a range of options. The survey should last no more than an hour.

Interested in participating:  Further details can be found in the participant information sheet (which can be found through the survey link). If you are happy to take part in the study, please visit the link:  https://coventrypsychology.qualtrics.com/SE/?SID=SV_0TlOpByLSRWz1Yh.

If you would like more information please contact Kathy Cook (cookk6@uni.coventry.ac.uk) or Dr. Sarah Cassidy (email: sarah.cassidy@coventry.ac.uk, telephone: +44 (0)2477 657038 ).

Posted: March 2017


Work experiences of adults with autism

Summary: We are interested to know why some adults with autism spectrum disorder get good jobs. We also want to know why some adults can retain jobs while others are unemployed. We need you to help us understand the experiences of finding and retaining a job.

Researcher(s): The Faculty of Social Work’s David Nicholas and Theresa Jubenville, doctoral candidate in the Werklund School of Education, University of Calgary.

Who can participate: Adults diagnosed with autism spectrum disorder, 18-65 years old

What’s Involved: Participants are asked to share their experience in a 45-minute session. Participants will receive a gift card of $20 for their participation.

Interested in participating: Please call Rosslynn Zulla at 780-492-8073 or email rzulla@ualberta.ca.

Posted: March 2017