Call for Participants

How to have your research study posted here:

If you would like your Call for Participants posted, please submit the Submission request for to Research@autismcanada.org along with a copy of your ethics approval.


 

Privacy Attitudes and Behaviours of Adolescents with Autism Spectrum Disorder on Social Media

Summary: We are looking for participants for a research study exploring how adolescents with autism spectrum disorder protect their privacy on social media. The results of this study will be used to develop accessible privacy tools and cyber-safety educational programs for this population.

Researchers: Jessica Rocheleau & Sonia Chiasson, PhD.

Who can participate: To be eligible to participate, you must be an adolescent (13 to 17 years) with autism spectrum disorder who is a regular user of Twitter, Facebook or Instagram; able to understand English; and comfortable participating in an interview with or without support.

What’s involved: Participants will complete a 30 to 40 minute interview (in person or via Skype) about their social media use and their reactions to different online social situations.

Interested in participating: If you are interested in participating or have any questions about the study, please email the lead researcher, Jessica Rocheleau, at jessica.rocheleau@carleton.ca.  Each participant will receive $30 CAD for their time.

Survey closes:  December 31, 2018

Posted: October 2018


Parents’ experiences & outcomes disclosing their child’s ASD diagnosis to others

Summary: Researchers at the University of Alberta are conducting an online parent survey that explores experiences and outcomes of disclosing their child’s diagnosis of autism spectrum disorder (ASD) in community programs.

Researchers: Dr. Sandra Hodgetts and Dr. Ashley McKillop.

Who can participate: A parent or caregiver of a child under the age of 18 with ASD. You must be 18 years or over to participate.

What’s involved: Complete an online survey that asks general questions about yourself, your experiences with disclosing your child’s diagnosis in community-based programs, and your preferences of who would disclose your child’s diagnosis in these programs. This anonymous, secure survey will take about 20 minutes to complete.

Interested in participating: For more information and to participate in the survey, please click this link: https://is.gd/disclosingASD

Survey closes:  December 31, 2018

Posted: October 2018


 

Comprehensive Characterization of the Social-Behavioural Phenotypes of Neurofibromatosis type 1 (NF1)

Summary: NF1 is a genetic condition which has a high co-occuring rate with Autism Spectrum Disorder. We are interested in exploring the similarities and differences between children with NF1 and children with ASD. 

Researchers: Dr. Katia Sinopoli, Dr. Patricia Parkin, Dr. Margot Taylor, Dr. Anne Wheeler, Dr. Elysa Widjaja, Dr. Russell Schachar, Dr. Lisa Strug, Ms. Andrea Shugar.

Who can participate: Healthy children and adolescents ages 9-15 with ASD and no other medical diagnoses.

What’s involved: Participation involves a full-day visit to the Hospital for Sick Children. This visit includes approximately 4-5 hours of neuropsychological testing for the child, a one-hour MRI, and two hours of parent testing that will occur at the same time as the child is being tested.

Interested in participating: To learn more and participate, please contact Research Coordinator, Stephanie Azari, at stephanie.azari@sickkids.ca or (416)-813-7654 ext. 204302. Participants will receive a parking voucher, a $25 meal voucher for the Sick Kids cafeteria, a movie ticket and a certificate for volunteer hours.

Posted: June 2018


Social Cognition in Children and Youth

Summary: This research study is investigating how children and youth diagnosed with Autism Spectrum Disorders and Fetal Alcohol Spectrum Disorders differ in their ability to make social judgments and decisions, and in their ability to take the perspective of others. Our hope is to use the results of this study to inform current practices and programs that can lead to happier and healthier lives for children with ASD and FASD. This project is supported by the Social Sciences and Humanities Research Council’s Partnership Engage Grant, a one-year grant that will support the project until December 2018.

Researchers: Michelle C. Hunsche, Megan E. Giroux, Dr. Brian Katz, Dr. Daniel M. Bernstein.

Who can participate: Children with Autism Spectrum Disorders and/or Fetal Alcohol Spectrum Disorders, ages 3-17.

What’s involved: Families can participate at Kwantlen Polytechnic University’s Surrey campus or in the comfort of their own homes. Parents/guardians will complete several brief social skills and demographics questionnaires (i.e., child’s age, diagnosis, how they behave in social situations) while a trained research assistant takes their child through a series of games designed to be fun and engaging for children of all ages and abilities. The study takes about an hour to an hour and a half per child (w/ breaks).

Interested in participating: To learn more or participate, please contact LifeSpanCognition@kpu.ca.  Parents/guardians of child participants receive $30 for their time.  Children receive a sweet treat as part of the study session. The deadline to participate is December 2018.

Posted: June 2018


Studying Technology use in Children with Autism Spectrum Disorder (ASD)

Summary: This project is about studying how children and youth with ASD use technology as compared to children without ASD. We also want to learn how kids and families feel about technology and what things about kids and families change the way technology is used.

Researchers: Dr. Azadeh Kushki, Scientist at Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital.

Who can Participate: Parents who have children younger than 19 years of age, and youth between the ages of 13 to 19.  Participants must also have access to internet to complete the survey.

What’s Involved: Completing an online survey with 47 questions. This usually takes about 10 – 15 minutes. The questions are about the technologies you use and how and how much you use different technologies.  We will also ask questions about you and your family. We will NOT ask you to tell us your name or anything else that may identify you. 

Interested in participating: To participate, visit this link. For more information and questions, please contact Stephanie Chow at 416-425-6220 x 6562 or schow@hollandbloorview.ca. The deadline to participate is November 2018.

Posted: June 2018


Autism/Sensory Sensitivities in the Emergency Department

Summary: This project is about trying to improve the system of the emergency department environment for children with autism and sensory sensitivities. In particular, we are interested in improving the triage and waiting experience. 

Researchers: Dr. Sasha Litwin and Dr. Katherine Sellen from OCAD University.

Who can Participate: Any parent/guardian of a child with sensory sensitivities and/or autism spectrum disorder who has an emergency department visit.

What’s Involved: Completing a 1-hour interview in person for parents who live in Toronto, or by telephone. The researchers are interested in interviewing parents/guardians of children with autism and sensory sensitivities who have visited any emergency department to learn more about their experiences. 

Interested in participating: To learn more or participate, please email Dr. Sasha Litwin at 3164583@student.ocadu.ca. The deadline to participate is June 6, 2018.

Posted: April 2018


Virtual Mindfulness for Adults with ASD

Summary: Mindfulness involves bringing your attention and awareness to the present moment, which can help to promote mental health and well-being. The researchers are interested in learning if mindfulness training is something that adults on the autism spectrum would be interested in taking part in, and if it can be delivered using a web-based program. The survey results will be used to design such a group.

Researcher(s): Dr. Yona Lunsky (Principal Investigator), Dr. Jonathan Weiss (Co-Investigator) and Dr. Johanna Lake (Co-Investigator).

Who can Participate: Adults (18+ years old) on the autism spectrum

What’s Involved: Completing a brief survey on your interest in mindfulness

Interested in participating: If you have questions about this study, please email yona.lunsky@camh.ca. If you would like to participate, complete the survey here. The deadline to participate is May 20, 2018.

Participants will not be compensated for participation in this study.

Posted: March 2018


Health Equity Status of Caregivers of Older Adults Who Have Autism

Summary: The purpose of this study is to learn about what is and is not working in Ontario in the care and service provision to older adults who have Autism. The researcher is seeking to learn what needs caregivers of older adults with Autism have, how these needs are met, by whom and what needs or questions are going unmet.

Researcher(s): Principal Investigator: Dr Ken Kirkwood. Co-Investigators: Heather Church, Ph.D Candidate, RP, BCBA. Western Health Sciences.

Who can Participate:  Caregivers who are not paid to care for someone 35 years old or older, who has Autism. Must be English speaking.

What’s Involved: Complete two 1-hour interviews.

Interested in Participating: Please contact Heather Church, Western Health Sciences, at hchurch3@uwo.ca.  Primary Investigator: Dr. Ken Kirkwood, Kkirkwo2@uwo.ca

Participants will not be compensated for participation in this study.

Posted: March 2018


Caregiver Resilience and Coping Resources

Summary: There is an increase in informal caregivers and a concern for their overall well-being. Informal caregivers are at increased risk of conditions that may negatively contribute to their overall health leading to caregiver burden. Therefore, the first aim of this study is to add to the knowledge of caregiver social support use by examining the relationship between caregivers’ confidence, ability, and resilience when managing caregiving responsibilities and their attitude towards social supports. The second aim is to better understand the concept of resilience in caregivers and to gain insight on how self-efficacy and language as a resource influences coping mechanism and resilience. Ultimately, the result of this research may help service providers improve supports and interventions to increase caregiver support resources such as personal skills and abilities and support networks.

Researcher(s): KJoanna Cheung Kwan Leung: joanche8@my.yorku.ca and Tonino Iafrate: tonino8@yorku.ca

Who can Participate:  Informal caregivers for a person requiring assistance with one or more activities of daily living. Caregivers must be older than 18 years of age. Monolingual and bilingual caregivers. Residing in North American continent.

What’s Involved: Complete questionnaire through one of three methods: online, mail-in form or through in-person interview.

Interested in Participating: Please contact KJoanna Cheung Kwan Leung: joanche8@my.yorku.ca and Tonino Iafrate: tonino8@yorku.ca. Survey link: https://www.surveymonkey.com/r/caring_4_carers

Participants have a chance to win one of five $10 Tim Horton’s gift cards.

Posted: March 2018


The role of the eyes in face recognition: A neurocognitive assessment in autism spectrum disorder

Summary: The Face Processing and Social Cognition Lab at the University of Waterloo is recruiting adults with ASD for a study on face recognition and social functioning. 

Researcher(s): Karisa Parkington (PhD Candidate, Department of Psychology, University of Waterloo) and Dr. Roxane Itier (Associate Professor, Department of Psychology, University of Waterloo).

Who can Participate: High-functioning adults (aged 18-45) with autism spectrum disorder (ASD) living in Kitchener-Waterloo, Ontario, or surrounding areas.

What’s Involved: Participants will be asked to complete two sessions (each session lasts ~three hours) approximately one week apart. Session One includes a demographics questionnaire, a face-to-face conversation (eye movements will be recorded), a short video (eye movements will be recorded), and paper tasks. Session Two includes four computer tasks with faces or cars (eye movements will be recorded for two of these tasks), two computer tasks with faces, objects, or facial features (EEG brain wave activity will be recorded) and five questionnaires.

Interested in Participating: Please contact Karisa Parkington at kparkington@uwaterloo.ca or (519) 888-4567 ext. 38872. Participants will receive up to $80 cash in appreciation of their time, and those travelling from outside the Kitchener-Waterloo region will also be compensated for travel. The deadline to participate is August 2019.

Posted: March 2018


 

Parenting stress in parents of children with developmental disabilities

Summary: The purpose of this study is to understand the commonalities and differences in the experiences of African immigrant parents, in order to identify ways to help parents cope better and to have a positive experience with their child.

Researcher(s): Busi Ncube, Ph.D. candidate, from York University.

Who can participate: African immigrant parents who have children with autism spectrum disorder (ASD).

What’s Involved: Completing an online questionnaire (15-20 mins) about your experiences raising a child with autism spectrum disorder. Participants will also be asked to complete a confidential interview that can be scheduled at their convenience. Interviews can be completed in person or over the phone (45-60 mins). 

Interested in Participating: For more information, please contact Busi Ncube at perrylab.york@gmail.com or 416-736-2100 ext. 40266. To participate, click here to begin the online questionnaire (password: Canada).

Parents will be offered $35 for their participation. Parents will remain anonymous – their names and identifying information will not be released with the results of the study.  

Posted: November 2017


Conversations with people with autism: A survey of partner perceptions

Summary: This study will explore whether the way a person with ASD communicates presents challenges to the conversational partner. This information may help the researchers to understand the conversational needs of people with ASD.

Researcher(s): Mark Carter (Associate Professor), Jennifer Stephenson (Associate Professor) and Mrs. Ying Sng, Ph.D. candidate, from Macquarie University in Sydney, Australia.

Who can participate: Anyone aged 16 and over who has regular conversations with a person diagnosed with autism.

What’s Involved: Participants are invited to access an online survey (link below). The survey should take less than 10 minutes to complete. Following, participants will be asked to:
1) Answer a number of non-identifying demographic questions about themselves and the conversation partner they have in mind (e.g., participant and conversation partner’s age, relationship – spouse, parent, friend, sibling etc.)
2) Respond to a number of statements describing a typical conversation with the individual with autism.

Interested in participating: For more information, please contact Mrs. Ying Sng via email ying.sng@mq.edu.au. To participate, click here.

Posted: November 2017