Call for Participants

How to have your research study posted here:

If you would like your Call for Participants posted, please submit the Submission request for to Research@autismcanada.org along with a copy of your ethics approval.


 

The use of Digital Communication Technology for Children with Autism Spectrum Disorder and the Impact on Family Dynamics

Summary: The purpose of the research study is to survey families with children with Autism Spectrum Disorder (ASD) from 3-8 years who use digital communication technology in their daily lives through an Online survey. The research will ask a series of questions regarding the usage of the device and the impact that it has had within the family. I am currently seeking to participate in a quick ten minute survey that will then be analyzed using descriptive statics for trends.

Researchers: Rhiannon Wood under the supervision of Dr. Monica McGylnn-Stewart, George Brown College.

Who can participate: Families with a child or children with an Autism Spectrum Disorder between the ages of 3-8 years who are currently using a digital communication device such as an iPad, iPod, or tablet for communication in the home.

What’s involved: Completing an approximately 10 min Online survey that can be found at https://goo.gl/forms/nXbF3K82WWvPp8vb2

Interested in participating: If you are interested in participating or have any questions about the study, please email head researcher Rhiannon Wood via email: Rhiannon.Wood@georgebrown.ca.

Survey closes: Saturday February 16, 2019

Posted: January 2019


Sleep Quality in Parents of Children with Autism Spectrum Disorder

Summary: Are you a parent of a child 4-10 years of age with Autism Spectrum Disorder? Has it been at least 1 year since your child received his/her Autism diagnosis from a physician/pediatrician? Tell us about your sleep! It is common for children with autism to experience sleep disturbances greater than children who are typically developing. Parents of children with autism, like yourself, may experience disturbances in your and your child’s sleep, which may impact aspects of your health and your experience in providing care for your child. Consider participating in our study!

Researchers: Samantha Micsinszki, Pamela Green, Dr. Marilyn Ballantyne, Dr. Kristin Cleverley, & Dr. Robyn Stremler.

Who can participate:Adults on the Autism Spectrum currently enrolled in a university program and who would like to participate in research.

What’s involved: You will be asked to complete an online survey that will take about 60 minutes. The survey asks questions about: you and your family, your child’s autism severity and behaviours, you and your child’s sleep, your health, including stress and depression, and your coping and support networks. If you are interested in participating in this study, you can participate directly via: https://is.gd/parentsleepstudy. Participants may choose to enter into a draw to win one of ten $100 e-gift cards. 

Interested in participating:  If you have additional questions, please contact Samantha at parentsleepstudy@hollandbloorview.ca with your interest, and she will get back to your shortly. Contacting us does not obligate you to participate in this study. Please note, email is neither confidential nor secure and users accept this risk by agreeing to communicate via email.

Posted: January 2019


A Career Developmental Perspective on Autism Spectrum Disorder

Summary: The study aims to understand the career trajectory of individuals on the autism spectrum who are enrolled in a graduate or undergraduate program.

Researchers: Francesca Dansereau PhD (candidate).

Who can participate:Adults on the Autism Spectrum currently enrolled in a university program and who would like to participate in research.

What’s involved:This study takes between 1 – 1.5 hours to complete. You will be interviewed at McGill university’s research lab where you will be asked questions regarding your career trajectory. Skype, FaceTime and alternative communication methods are always available. Each participant will be compensated 10$ for their time. 

Interested in participating: If you are interested in participating or have any questions about the study, please email head researcher Francesca Dansereau at email fpdansereau@outlook.com.

Posted: January 2019


INTERNATIONAL EXPERT & STAKEHOLDER SURVEY – ACSF:SC Age Expansion Research – Phase IV _ Autism Classification System of Functioning: Social Communication (ACSF:SC) – Expansion, Testing, and Feasibility for Charting of Early Trajectories from Toddlers to School-Aged Children

Summary and who can participate: We are inviting all international experts and stakeholders, who have direct contact with children/youth with Autism, to participate in this survey study about a social communication measure, the ACSF:SC Tool and User Guide. This measure is a user-friendly way to classify the social communication levels of children/youth with autism.

By ‘Social Communication’ we mean the ability to communicate (with words or gestures) with various people (familiar or strangers) about what children want (social or basic needs). We know this tool works well for preschoolers, because that is the age group we worked with when developing this tool (v2016). We have now adapted an ACSF:SC-Integrated (v2018) to be inclusive of both toddlers and school-age groups. The purpose of the survey is to collect your feedback on this age expanded working draft. The information gathered from you will help us to refine this into a finalized version.

Researchers: Peter Rosenbaum & Briano Di Rezze (McMaster University).

What’s involved: To participate in this survey, please click on the link https://surveys.mcmaster.ca/limesurvey/index.php/151726?lang=en.  You will have two opportunities to download the User Guide and the 5-Level Tool.  If you have any trouble with the survey link or with the ACSF:SC-Integrated download, please contact the study coordinator, Helena Viveiros (SocCom@mcmaster.ca or 905-525-9140 x27849).

Interested in participating: If you are interested in participating or have any questions about the study, please email the study coordinator, Helena Viveiros (SocCom@mcmaster.ca or 905-525-9140 x27849).

Survey closes:  February 15th, 2019

Posted: January 2019


Dietary Patterns and Supplement Use in Paediatric Autism

Summary: The study aims to fill gaps in the literature regarding the misinformation and health risks associated with supplement use in paediatric autism. Our research team is looking to recruit children between the ages of 4 and 18 years and their parents to complete a survey about their perceptions and use of dietary supplements.

Researchers: Dr. Jane Shearer and Dr. William (Ben) Gibbard.

Who can participate: The population studied will include children between 4 and 18 years of age who have been formally diagnosed with autism spectrum disorder, regardless of previous or current supplementation use. 

What’s involved: Children with a formal diagnosis of autism between the ages of 4 and 18 years and their parents will be asked to complete a survey about their perceptions of supplements. A consent form is provided in the link: https://tinyurl.com/ycvgvcf6. Participants will be electronically sent a $10 Chapter’s gift card.

Interested in participating: If you are interested in participating or have any questions about the study, please email the lead researcher, Contact Melanie Trudeau, mstrudea@ucalgary.ca if you have any questions.

Survey closes:  Recruitment will be on going until 100 responses are collected.

Posted: January 2019


Health Equity Status of Caregivers of Older Adults Who Have Autism

Summary: The purpose of this study is to learn about what is and is not working in Ontario in the care and service provision to older adults who have Autism. The researcher is seeking to learn what needs caregivers of older adults with Autism have, how these needs are met, by whom and what needs or questions are going unmet.

Researcher(s): Principal Investigator: Dr Ken Kirkwood. Co-Investigators: Heather Church, Ph.D Candidate, RP, BCBA. Western Health Sciences.

Who can Participate:  Caregivers who are not paid to care for someone 35 years old or older, who has Autism. Must be English speaking.

What’s Involved: Complete two 1-hour interviews.

Interested in Participating: Please contact Heather Church, Western Health Sciences, at hchurch3@uwo.ca.  Primary Investigator: Dr. Ken Kirkwood, Kkirkwo2@uwo.ca

Participants will not be compensated for participation in this study.

Posted: March 2018


Comprehensive Characterization of the Social-Behavioural Phenotypes of Neurofibromatosis type 1 (NF1)

Summary: NF1 is a genetic condition which has a high co-occuring rate with Autism Spectrum Disorder. We are interested in exploring the similarities and differences between children with NF1 and children with ASD.

Researchers: Dr. Katia Sinopoli, Dr. Patricia Parkin, Dr. Margot Taylor, Dr. Anne Wheeler, Dr. Elysa Widjaja, Dr. Russell Schachar, Dr. Lisa Strug, Ms. Andrea Shugar.

Who can participate: Healthy children and adolescents ages 9-15 with ASD and no other medical diagnoses.

What’s involved: Participation involves a full-day visit to the Hospital for Sick Children. This visit includes approximately 4-5 hours of neuropsychological testing for the child, a one-hour MRI, and two hours of parent testing that will occur at the same time as the child is being tested.

Interested in participating: To learn more and participate, please contact Research Coordinator, Stephanie Azari, at stephanie.azari@sickkids.ca or (416)-813-7654 ext. 204302. Participants will receive a parking voucher, a $25 meal voucher for the Sick Kids cafeteria, a movie ticket and a certificate for volunteer hours.

Posted: June 2018


 

The role of the eyes in face recognition: A neurocognitive assessment in autism spectrum disorder

Summary: The Face Processing and Social Cognition Lab at the University of Waterloo is recruiting adults with ASD for a study on face recognition and social functioning. 

Researcher(s): Karisa Parkington (PhD Candidate, Department of Psychology, University of Waterloo) and Dr. Roxane Itier (Associate Professor, Department of Psychology, University of Waterloo).

Who can Participate: High-functioning adults (aged 18-45) with autism spectrum disorder (ASD) living in Kitchener-Waterloo, Ontario, or surrounding areas.

What’s Involved: Participants will be asked to complete two sessions (each session lasts ~three hours) approximately one week apart. Session One includes a demographics questionnaire, a face-to-face conversation (eye movements will be recorded), a short video (eye movements will be recorded), and paper tasks. Session Two includes four computer tasks with faces or cars (eye movements will be recorded for two of these tasks), two computer tasks with faces, objects, or facial features (EEG brain wave activity will be recorded) and five questionnaires.

Interested in Participating: Please contact Karisa Parkington at kparkington@uwaterloo.ca or (519) 888-4567 ext. 38872. Participants will receive up to $80 cash in appreciation of their time, and those travelling from outside the Kitchener-Waterloo region will also be compensated for travel. The deadline to participate is August 2019.

Posted: March 2018